EMIF: “Digital Citizen, Digital Patient”

28th-29th June, Tallinn, Estonia


This conference will inspire EU healthcare thought leaders to present research findings and share best practices on the use of data at all points of the healthcare value chain:

  • ‘Digital Citizen, Digital Patient’ leveraging the experience in the use of informatics to aid the smooth running of government.
  • Relevant best-case examples of patient-driven data and wearables improving both outcomes and research.
  • Evidence of how this evolving relationship is influencing life sciences research, clinical development and post-authorisation access.

The conference is supported by the Innovative Medicines Initiative (IMI) European Medical Information Framework (EMIF) programme, one of the largest health public-private partnerships, and its collaboration of leading academics, researchers and ten pharmaceutical companies under the European Federation of Pharmaceutical Industries and Associations (EFPIA), led by Janssen Pharmaceutica


June 28th 2017 Hilton, Tallinn, Estonia

19:30 VIP Speakers Dinner

  • Peeter Ross, Professor of Health Care Technology, Tallinn University, Estonia
  • Ain Aaviksoo, Deputy Secretary General on eServices and Innovation, Ministry of Social Affairs, Estonia

June 29th 2017 Hilton, Tallinn, Estonia

8:00 – 9:00 Registration & Coffee
9:00 – 9:10 Welcome

  • Bart Vannieuwenhuyse, Quanitative Sciences, Janssen Pharmaceutica & Coordinator EMIF
9:10 – 10:40 Opening Keynote Session: Supporting a Data Driven Patient Journey in Europe – How Can Member states Help Drive Results?

  • Ain Aaviksoo, Deputy Secretary General on eServices and Innovation, Ministry of Social Affairs, Estonia
  • Pierre Meulien, Executive Director, IMI
  • Bart Vannieuwenhuyse, Quanitative Sciences, Janssen Pharmaceutica & Coordinator EMIF
  • Terje Peetso, Head of eHealth and Ageing Policy Sector, DG CONNECT, European Commission
10:40 – 11:10 Coffee Break
11:10 – 12:40 Patient Driven Data Generation – What Are the Evolving Trends and Opportunities?

  • Simon Lovestone, Professor of Translational Neuroscience, Oxford University, UK
  • Elin Haf Davies, CEO and Founder, Aparito, UK
  • Külle Tärnov, Head of Business Development, TUT Tehnopol, Estonia
  • Bettina Ryll, Founder, Melanoma Patient Network Europe
12:40 – 13:25 Networking Lunch
13:25 – 14:40 Incentivising the Sharing of Stakeholder Health Data – What works?

  • Nigel Hughes, Scientific Director, Quantitative Sciences, Janssen Research and Development
  • Lembit Rägo, Secretary-General, Council for International Organizations of Medical Sciences (CIOMS)
  • Pieter Jelle Visser, Clinical Epidemiologist, Maastricht University
  • Alison Bourke, Scientific Director, QuintilesIMS
14:40 – 15:00 Coffee Break
15:00 – 16:15 Harnessing Health Data for Managing Patient Benefit Risk – What new processes are needed?

  • Nicola Bedlington, Secretary General, European Patients’ Forum
  • Tõnu Esko, Deputy Director of Research, Estonian Genome Center, Tartu University, Estonia
  • Johan van der Lei, Professor Doctor, Erasmus MC Amsterdam, The Netherlands
  • Wim Goettsch, Director, EUnetHTA JA3 Directorate/Zorginstituut The Netherlands
16.15 – 17.30 Networking Cocktail



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